|Day 3 and He Still Can Find His Smile|
|We Are More Thankful Than Ever That We Decided on a Port for Meds|
|It's hard to see in this picture but his ankles were about the size of|
tennis ball. There was also redness and swelling above his little toe.
|This was one of his ankles the next day. A little less swelling, but vasculitis is|
evident and he kept getting rashes. There is a bit of a rash here
above his ankle.
|Swollen little hands, with red fingertips, grey middle segments|
and white hands. (Picture doesn't show clearly)
|Rashes on arm, again it's not clear, but there were pink lines.|
Rashes come and go daily again.
|A Gaspirilla Krewe visited and|
handed out beads to Logan.
In addition to our battles with JA, our other son, Logan, was hospitalized multiple times with severe migraines. I know many out there reading this will be thinking about his well being and the stress of JA on our family system impacting Logan. Of course it does! How could it not?! But we are pretty sure that these migraines were a combination of triggers. One, he’s had migraines (that have been under pretty good control) since he was 5. More recently, the combination of JA stress with his brother, puberty, and the IB program have certainly triggered this 7.5 week long intense migraine. After a huge scare that this episode could have also been autoimmune related (he is ANA positive which is a marker in the blood) and thus ruling out vasulitis of the brain, we are very relieved that a combination of meds is now controlling his migraines again. He is also going to be in biofeedback therapy soon which we are sure will give him some great coping tools. Then hopefully we can also wean some of the medications.
|Logan's Spinal Tap|