tag:blogger.com,1999:blog-8989830041824716140.post103727696390585615..comments2023-09-27T03:14:34.324-07:00Comments on Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Choices That No Child Should Ever Have to MakeLentini Familyhttp://www.blogger.com/profile/02298681320327634181noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8989830041824716140.post-82566217432900871192013-10-18T06:09:39.436-07:002013-10-18T06:09:39.436-07:00So you definitely understand how hard it is...Park...So you definitely understand how hard it is...Parker actually spent the last 2 years in hospital homebound and did a bit of on-line virtual school. He was so very excited about finally returning to school...but I think he is at peace with this decision. He is really concentrating on his health and we have increased his PT. Taking one day at a time. I hope your son is doing ok and hugs to you. Thanks so much for sharing.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-16662250598006391742013-10-18T06:05:46.512-07:002013-10-18T06:05:46.512-07:00Any friends of the Howe's are friends of ours....Any friends of the Howe's are friends of ours. Thank you for your advocacy with JAA. It is encouraging to hear about your experience and memories. He has now gone for his second acupuncture apt and so far so good. Katie, I so appreciate you posting and thank you so much for your work with JAA and for sharing a piece of you with us. I hope that your current treatment is working. Much love.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-79785035208435836112013-10-18T06:02:08.447-07:002013-10-18T06:02:08.447-07:00I am so glad to hear that folks have been happy wi...I am so glad to hear that folks have been happy with the NIH. Parker was involved with one study through there but all was done locally. Thanks so much for your kind words. I so appreciate it.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-91294421566775840082013-10-18T06:00:23.670-07:002013-10-18T06:00:23.670-07:00Thank you so much for the encouragement, kindness,...Thank you so much for the encouragement, kindness, and prayers.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-62356571863902214202013-10-17T05:20:12.613-07:002013-10-17T05:20:12.613-07:00We had to withdraw our son two years ago. With som...We had to withdraw our son two years ago. With some homeschooling, he may not have to repeat a grade--it takes far less time than being in school and saves a lot of energy. We're using Teaching Textbooks for math, Sonlight for history/lit, for example. I know how difficult it is for your child (and you) to be that sick--hoping for the very best for him!FridaWriteshttps://www.blogger.com/profile/03321658097813377806noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-53220401513166316002013-10-16T09:55:15.932-07:002013-10-16T09:55:15.932-07:00You don't know me but I've followed Parker...You don't know me but I've followed Parker's story for a long time now. I'm a friend of the Howe's and I work with the JAA. I've had JRA since I was 7 and they pulled me out of school in 8th grade because they didn't have biologics just yet and I wasn't responding to anything they did have. I feel so many things when I read your updates about your family. It really brings back memories, good and bad. I'm so sorry things are going this way. Parker is so very brave. I hope the Acupuncture does keep working. I've gotten it on my shoulders before so I know just how brave he is. I hope there is some light at the end of this tunnel soon! Please give Parker a hug for me and one for yourself too. Katiehttps://www.blogger.com/profile/04944324651629050850noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-47088294554757886472013-10-15T18:35:32.912-07:002013-10-15T18:35:32.912-07:00NIH is an amazing place. Keeping you all in my pr...NIH is an amazing place. Keeping you all in my prayers! Tell Parker he is an inspiration!Lolabellaquin https://www.blogger.com/profile/08469028235887433547noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-77679621939823260402013-10-11T17:47:36.270-07:002013-10-11T17:47:36.270-07:00I was at the NIH last year and it was amazing, suc...I was at the NIH last year and it was amazing, such a wonderful place, if you feel lead there, go for it, sending you and parker prayers and hugsWendy Khttps://www.blogger.com/profile/00637761131440927219noreply@blogger.com