tag:blogger.com,1999:blog-8989830041824716140.post1896925886586979498..comments2023-09-27T03:14:34.324-07:00Comments on Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Challenges, By ParkerLentini Familyhttp://www.blogger.com/profile/02298681320327634181noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-8989830041824716140.post-69796893893838516782015-03-12T10:49:07.635-07:002015-03-12T10:49:07.635-07:00This is Parker's mom...and he is currently rec...This is Parker's mom...and he is currently recovering from reconstructive surgery on is feet, ankles and tibia bones on both sides...your comment gives me hope. Thanks so much for sharing.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-38905092237730449942014-11-20T12:43:13.974-08:002014-11-20T12:43:13.974-08:00Dear Parker,
Thanks for sharing your post. I was d...Dear Parker,<br />Thanks for sharing your post. I was diagnosed with JRA as a kid, but am now an old lady in my 20s ;). I remember being so scared of surgery as a child/teen and I put it off as much as possible. I eventually had it done. While it was a tough process, the pain in my ankle improved significantly and I now wish I'd done it sooner!<br />Sorry about all the difficulty at school. You are doing so amazing, continue being yourself and doing the things that make you feel happy. You have friends all over the world fighting with you. Take care and all the best!<br />-rarainbow.wordpress.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-17418918306980668642014-11-02T09:37:35.851-08:002014-11-02T09:37:35.851-08:00Your son is definitely not alone. Orthotics and s...Your son is definitely not alone. Orthotics and splints have been tried without success...stinks. Might go to a special brace before surgery.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-68967277419862697922014-11-02T09:36:32.011-08:002014-11-02T09:36:32.011-08:00I hate that Savannah is also in pain. Love and pr...I hate that Savannah is also in pain. Love and prayers for her too. She is my hero.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-89859825687490998712014-11-02T09:35:51.716-08:002014-11-02T09:35:51.716-08:00Giving up is not an option :)
Giving up is not an option :)<br />Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-45675755987544985662014-11-02T09:35:28.493-08:002014-11-02T09:35:28.493-08:00It would be great to meet one day! We all must po...It would be great to meet one day! We all must pound together.Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-75332685448954409542014-11-02T09:34:52.170-08:002014-11-02T09:34:52.170-08:00I think we could all morph into one big family...w...I think we could all morph into one big family...what do you think. I appreciate you posting these thoughts for Parker. He needs to know and believe all of this. Some days are easier than others at remembering. Love you and your entire family so much.<br />Lentini Familyhttps://www.blogger.com/profile/02298681320327634181noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-81966479656880643012014-09-30T09:12:55.952-07:002014-09-30T09:12:55.952-07:00Parker... I hope you can remember that the world o...Parker... I hope you can remember that the world of school, though it seems so big- is actually a very small part of the world. And though you may not find the friends you deserve there... please always remember in your heart that you have friends all over the world - who love your sense of humor and your creativity. Friends who understand you and cherish you. The world will open up and reveal things you did not dream of..... Keep the faith. Thank you for sharing....<br />P.S. You do have the bets family in the world. I totally love my family - but I still sometimes wish you all would adopt me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-88055360047947795752014-09-29T13:33:14.904-07:002014-09-29T13:33:14.904-07:00Thanks for sharing this story. My son with JA als...Thanks for sharing this story. My son with JA also has pronated ankles. So far he's done pretty well with orthotics. I hope he never needs to have surgery on them, but at least he'll have confidence he's not alone.Jen Crumhttps://www.blogger.com/profile/15320387061431269016noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-20468825360273413792014-09-29T06:36:32.692-07:002014-09-29T06:36:32.692-07:00Parker, You are one of the bravest people I know....Parker, You are one of the bravest people I know. I am the mother of a child with JA (Savannah...she will be 12 years old in three weeks). She, like you, is in pain every single day. I am so proud how you choose to keep going every day. I am so glad you share your story, because it helps me understand your journey better...and Savannah's journey. You are making a difference in so many people's lives...both young and old. You are my hero. -Jenny Nelsonhopeforsavannahhttps://www.blogger.com/profile/04467864938336814241noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-26711578710010356812014-09-28T14:42:20.400-07:002014-09-28T14:42:20.400-07:00What amazing strength and fortitude do you have Pa...What amazing strength and fortitude do you have Parker. Never give up. Andersonshttps://www.blogger.com/profile/11199310430463982044noreply@blogger.comtag:blogger.com,1999:blog-8989830041824716140.post-81734937135462982552014-09-28T14:28:54.347-07:002014-09-28T14:28:54.347-07:00My goodness Parker, you are an inspiration to ever...My goodness Parker, you are an inspiration to everyone! You are such a strong young man to keep on pushing beyond your pain, or should I say Pounding for a cure! I hope someday to meet you. You are my hero!SnazzyCathttps://www.blogger.com/profile/18167816322135974322noreply@blogger.com