tag:blogger.com,1999:blog-8989830041824716140.post2888089404748347932..comments2023-09-27T03:14:34.324-07:00Comments on Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Living in the Moment…Lentini Familyhttp://www.blogger.com/profile/02298681320327634181noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8989830041824716140.post-16690582009144022362015-05-25T15:15:43.875-07:002015-05-25T15:15:43.875-07:00Hi, I am a 19 year old with enthesitis and POTS. A...Hi, I am a 19 year old with enthesitis and POTS. As I was reading this post as you described his heart symptoms I was thinking it sounded an awful like POTS. I actually go to college in Philadelphia and see multiple specialist at CHOP, I am not treated for POTS there (due to the diagnosis coming when I was already 18) but I know many other people you are and love Dr. Boris.I do go to CHOP for my GI issues related to the autonomic nervous system and have had a very good experience. I am hoping to get into NYU for Dysautonomia. Please feel free to contact me. I would love to share my first hand experience to hopefully help Parker!life with a flarehttps://www.blogger.com/profile/02269508008994193179noreply@blogger.com