Renewed Hope!

As I reflect on the last week in the hospital, I now know we were exactly where we were suppose to be…As much as one doesn’t ever want to spend time in such a place, being there allowed for the doctors to try to reduce Parker’s pain while they teamed, examined him, ran tests, and tried some meds. 



Parker was very scared about returning to the hospital.  On the way up there, he told me that he and his counselor had discussed this the day prior because he felt like he was getting worse and might have to go.  He proceeded to share that there are some things that are “good” about the hospital:  he loves the nurses on unit 42; he would like to play with the child life specialist again…she loves video games and they battle, plus she really gets him; and he thinks it’s cool that there are Xboxes in every room since sometimes he can’t leave his room.  I was very impressed at how he was trying to find the positive in going to the hospital!

So, we get to the hospital…and guess what?!  Unit 42 is full, so we are put in an area where there are not only different nurses and a different child life specialist, but you guessed it…no Xboxes either.  Woah!  There was complete disappointment and Parker bit his lip trying to hold back his tears.  But then he took 3 deep breaths and he said…”It won’t be that bad.  We are next door to Emily (a JA bud) and we will meet some new nurses.” 

Igi Bear is accessed and ready for his hospital stay too!

Enter the first nurse who delivered the news that he could NOT leave his room because of the bleeding he was having and he might have c-diff, and she was not very friendly…but we only had her once and ALL the other nurses were fabulous!  The nurse who came in to access Parker’s port was a hoot!  She joked around with Parker and even accessed his Igi Bear’s port!  What an incredible gal.  Loved her! 

On Monday, I contacted Parker's beloved child life specialist and she came by in her Halloween costume, so he was thrilled.  And guess what?!...She got him an Xbox on a cart.  She is the “most to say the least”! 

Later, many docs came in…including Parker’s rheumy and the new rheumy who we have grown to love already (he was with Parker the entire week).  They put their great minds together, began to hypothesize and order tests.  Later in the day they returned…He did not have c-diff…yay, we were off quarantine; but he has osteopenia and they were concerned more was going on, so the first of 3 sets of MRI’s were ordered. 

They also broke the news…both docs felt like he should try combining a second biologic, one he failed before.  A shot called Enbrel…well that certainly did not go over good with Parker…And because he was a bit ticked about this we got to meet psych…that was fun, not.  I have to admit though; he never yelled nor cried…he just “refused”.  I asked the docs to give me a day to talk to him and prep him.  They did.  And he did J agree to the shots.  Psych, by the way, found him to have mild anxiety but great coping skills and they thought it was great that he had started counseling.  When they came back as a “group of 6”… I was just about to hop in the shower…I had to scurry to dress and come out.  I add these details because I just have to laugh…there is not a dull moment in the hospital and I felt like a new mom with a baby who just wants to shower… So the 6 of them did their final analysis and then I went to the hall with them.  I found out that they were not familiar with systemic JA.  And I thought…hmm…again, I am exactly where I should be in this moment…I share a bit with them about what it is and what it is like to experience it as a parent watching a child who understands everything the docs say.  I knew that 5 of them were student/residents.  What a great opportunity to educate.  I think that some of the psych students might have needed a psych eval…they looked scared to death.

Parker was called to MRI just as the Halloween party was starting, so he missed the “trick-or-treating” hospital style.  But an amazing thing happened.  When we got back to the room, he saw a goodie bag waiting for him.  He emptied the whole bag and was so excited because there was NO candy in it…yes, you read that right…no candy.  See, he is allergic to corn and corn is in so much candy.  His bag was full of gadgets, toys, and this really cool Batman activity book.  He couldn’t believe it…because he was Batman for Halloween, so he thought that was just perfect.  He was so excited he told his friend Emily (next door).  And guess what?!...Gavin (another JA bud who joined us on the floor that day because unit 42 was still full) and Emily made that goodie bag for him.  What amazing friends we have!  Thank you so so much Gavin and Emily!

We had a difficult night Halloween night…Halloween is Parker’s favorite holiday.  It was hard for him to hear about his brother’s fun and he was in sooooo much pain that night.  It was just long and hard.  We landed back in MRI the next morning bright and early for a 3.5 hour MRI.  The MRI tech marveled at how amazing he did and went on and on about how he did better than any adult she has ever scanned.

Purple Sock Monkey
stayed with Parker for all 3 MRIs.

After the MRI, I have to admit, I could tell Parker was losing “hope”.  They were desperately trying to decrease his pain with an alternating schedule, every 3 hours, of toradol then morphine in his port.  So 6:00 toradol, 9:00 morphine, 12:00 toradol, 3:00 morphine…We kept thinking…this time his pain will decrease…but it only did a bit from a 10 plus to a 10 minus.  The hardest thing in the world for me is to see Parker in so much pain he cannot sleep.  And after 3.5 hours in the MRI machine, he looked totally wiped out.  I could see tears in his eyes.  He held his little purple sock monkey so tight and close to his heart as we waited to be transported back to his room, which by the way was a half a mile away because we took a tunnel over to the other side of the hospital across the street.  I leaned down and kissed his forehead and Parker reached up and wrapped his arms around my neck.  I whispered in his ear, “I know this is hard.  You did amazing in the MRI.  I know you hurt, but please do not lose your hope.”  He leaned back and looked in my eyes and I said again, “Remember, we have to stay hopeful, they will figure this out.”  He said, “Don’t worry mom, with hope anything is possible.”  Just at that moment, a beautiful young girl came into the room and said, “Hi, I’m Hope and I am here to help you back.”  Parker and I just started to crack up and this time tears welded up in MY eyes…Parker told her what we were just discussing.  And she said, “See, you asked for Hope and I was sent to you.”  They chatted all the way back as I prayed for his relief and answers.

After that trip back and a bit of “bribing”, Parker agreed to the Enbrel shot.  When the doc came in the day after his shot and we told him that Parker’s pain was decreasing, he just smiled, looked at his watch and said it’s about 24 hours since he got his shot.  It was exactly 24 hours after his shot and his pain began to decrease after a year and a half of incredibly intense pain!  WOW!  The doc shared with us we needed to do one more MRI.  We did it…Parker has a genetic defect that he explained as dilation of the cervical spinal cord at C4-5.  At first he was nervous about this but he consulted pediatric neurology and they said it’s within a limit where they don’t have to treat.  So that is marvelous news.

Sent silly faces to my friend to pass the time.
Thank you Grandma for my Cookie Monster and slippers.

A couple days after the shot, Parker got his Actemra infusion treatment and we went home.  Thank you to everyone for your support and kindness!  His pain has continued to decrease.  He is at a 6 today!  Yes, a 6!!!  And he got his 2^nd shot tonight.  We thank God and the doctors for finally giving our son relief.  He now has 2 biologics, Enbrel and Actemra, combating his systemic JA.  Enbrel is a TNF blocker and Actemra is an IL-6 inhibiter.  So I guess this means that Parker’s body has two types of cytokine that were over producing and telling the body to create cells to attack Parker’s own body.  Of course there are also tons of warnings about giving 2 biologics and it’s not recommended because each weakens the immune system.  But what are parents supposed to do when their child’s own body is attacking itself putting his organs at risk?  Parker has already had problems with his heart, bladder, lungs, lymphs, and stomach…So we took a leap of faith and we “HOPE” it works!  Our child’s voice is back.  He is smiling with less pain behind those eyes.  He is going to school again and loving it!  Logan says his charisma has returned.  For our family…our HOPE is renewed.

Parker LOVED this saying that was in his room!







My Family’s Bucket Overflows with Thankful Reflection…

I am so very thankful for each person who takes the time to try and understand and reflect on our families’ struggles and strength.  If you are reading this, thank you for stopping for a moment to join in our family’s journey.  I have learned this week that some people feel that what we write is too depressing and some have even de-friended us or have talked negatively about us.  I know that what we are going through is hard to understand or may cause sadness, and it’s ok if some do not want to take part…but for those of you who do…thank you…this is my attempt to share some positives in our lives…we ARE a generally happy family who just happens to have some struggles at the moment and writing is one way of processing…

Today, in spite of all that happens with regard to Parker’s JA, I am thankful for the gifts in our life.  For those who have attended any of my work trainings or those who came to the JA Tampa Family Connect Day, you heard about the importance of “Filling Your Bucket” (Fill a Bucket: A Guide to Daily Happiness for the Young Child by Kathy Martin and How Full Is Your Bucket? Positive Strategies for Work and Life by Tom Rath)…See, we all have a bucket and the fuller our bucket is the better we are, the more able we are to cope with hardships, the stronger we become, the happier we feel…but sometimes our buckets are dipped into.  Of course, illness dips into our bucket… as does too much on our plates, mean words, problems, frustrations, unkind acts, etc.  When our bucket become empty we have little left to draw from, so it is important to fill up our buckets and the buckets of our friends, family, ….people we care about.  And a funny thing happens when we “fill others’ buckets”, we also fill our own bucket at the same time.

Michael and I have two happy boys, each with their own gifts that are unique to them.  Parker loves purple (like you didn’t know that already), is an avid Rays Fan, and has great friends and a way with younger children.  He enjoys video games (truly an escape), is a great little chief, likes making videos and doing photography, is a wonderful writer, likes social studies, has great coping skills and problem solving strategies, is incredibly brave, is an artist in the making, and enjoys the beach.  He can also find a way of using humor in a very positive way.

Logan is growing into a wonderful young man.  He knows how to have fun, he thinks of others, is a helper by nature, and a pretty happy go lucky kid who goes with the flow.  He is engaged in the high school life:  lots of studying, band, after school outings, trend setting, and dances.  He cracked me up this week…he created a Facebook Event and about 50 kids participated in dressing formal for school on Friday!  Logan also thinks “big”…he tries to give back to the others, is always thinking of ways to raise awareness, and he strives to always to his best.    He loves music, playing the sax and guitar, skateboarding and skim boarding, and is open minded.  And of course, Michael and I are incredibly proud of his volunteer work with the Arthritis Foundation.  Logan did an amazing job at putting on the Tampa JA Family Connect Day last weekend.  If you would like to see the pics and day’s events please visit the website link and scroll down a bit:  http://www.arthritis.org/chapters/florida/juvenile-arthritis.php

I also would like to take a moment to fill my husband’s bucket.  He totally overflowed my bucket last weekend with his amazing “first” blog and it helped me get through the 6 days in the hospital with Parker.  Michael has a way of making people laugh and sometimes people don’t see that extra sensitive side of him.  He is an amazing father and my partner for life.  I say partner because we are together, connected, and we jointly make decisions about our family.  He is respectful, kind, and has a way of calming me when I feel the world is caving in.  We balance each other.  He is goal driven and the love he shows me and the boys is deeply profound and unconditional.  I am so very thankful to have him in my life and I love him dearly. 

Don’t get me wrong…the boys can fight, my husband and I can agree to disagree, we all can get on each other’s nerves every now and then, our house looks like a bomb went off more often than not these days, but we have each other…no matter what!

I want to thank each and every person who has seen “our buckets emptying” and have filled it back up with your kindness, support, notes, encouragement, phone calls, mail, and hugs.  It’s interesting how just a few unkind thoughts/people/difficult events can really dip deep and sometimes rapidly drain our buckets, but I am trying hard to quickly remind myself there are some who have filled our buckets, so I try to dip into those reserves when needed.  So I encourage folks, when you see someone struggling or sad or frustrated… try “filling their bucket”, you might be surprised in how your own bucket begins to overflow.

It's been a very up and down weekend.

It has been a very up and down weekend.  On Saturday we had the JA connect day in Tampa, which Logan helped plan.  He did a great job, with help from Rochelle and the Arthritis Foundation.  We are so very proud of Logan and all he did to make this day so great.  He is such a great big brother. 

The day started on such a high note and well, life with JRA has a way of changing things.  Parker has been having a very difficult couple of weeks and hit rock bottom on Saturday.  One of his doctors was at the connect day and said we needed to take him in, to Shands in Gainesville.  So when we got home, we packed Parker a bag, and Rochelle packed, and they were off.  Not knowing how long they will be there, or what to expect, this is what we have become accustomed to.  Of course the usual to start, blood work, which came back fine, so we have that going for us.  X-rays of chest, knees, ankles, and back.  Still waiting to hear about those.  Now waiting on MRI's.  Doctors told Rochelle it could be something in addition to Arthritis.  Really!  Like Parker doesn't have enough to deal with.  This JRA thing is just not fair.

Rochelle is so strong and such a wonderful mother, she is always there for her boys.  I wish she (us, Logan, and of course Parker) did not have to deal with this. It is so hard to explain to people what we (mostly Parker) are going through.  They see Parker and they do not see the pain he goes through every day, hour, minute.  People do not know the "show" he puts on because he wants to be treated normal and make people feel good.  He wants to be like his friends, go to school, play, etc.  We (as a family) are now part of this" club", JRA, and not by choice.  Most people don't get it, and never will, get what we go through every day, but the "club” members do and their support is amazing.  I truly thank all of you.  I am not saying all don't get it.  I am merely saying not enough people understand JRA.  Which brings me back to Logan.  What he did this past Saturday, JA Connect day, was such a special event.  He worked on this event for 2 months and it was such a successful event. 

We now wait to hear what is next for Parker.  As hard as this is for him, it is just as hard for Rochelle.  As stated, she is so strong and I love her so much.  She is such a wonderful person.   So keep Parker in your thoughts.  Know that he has his mother, Rochelle one of best humans I know, with him.

Today is Today…the Day Before Tomorrow

I think that today was one of the hardest days I have had to face so far.  I am not quite sure why.  Maybe it was because this week was so intense (endoscopy/colonoscopy, port insertion, ankle/wrist splint fitting, and infusion treatment).  Maybe it’s because of all we, as a family are juggling (work, two boys with busy lives, housework, tons of medical appointments, etc).  Maybe it was because of the constant unknown and never being fully prepared. Or maybe it was simply because it’s been raining non-stop and it seems to be affecting every kid with JA that we know.

We try to desperately believe that things will get better.  We constantly pray for healing, strength, and relief.  We continually marvel at the strength of our family.  We pause to celebrate the little things that bind us to each other and appreciate the support of those who care about us.  Our hope is vast…but today is today…and in this moment, we are struggling to make huge decisions all while we continue on.

Every time Parker exerts his joy in the moment, it seems there is a harsh price to pay.  All week has been hard on his body.  He tries to push himself but with caution.  But it seems to be a constant battle to find that balance his body demands.

He made 2 hours to school this week.  This was amazing considering this week.  Half of his tests came back from his endoscopy/colonoscopy.  He does have gastritis (swelling of the stomach lining).  One small reminder that all his organs can be affected by inflammation of his systemic (hate that word these days) JA.  If this was the only thing we were dealing with, it might not be as big of a deal…but he is not eating well.  The other half of the tests are still being processed…stay tuned, hopefully with good news.



Parker's Port on Day 4, healing nicely.



His port is in and functioning well.  However, his body would not behave normally for this either.  The surgeon could not find a good vessel in his chest, so he had to go in his neck, therefore his port is subclavical (higher than normal).  And the surgeon also noted that he bruised more than normal.  He has some issues with how his blood pools and is bruising pretty easily.  When he came out of his surgery, he reported that his pain was at a 6.  Now let me clarify a bit.  He was a 10 at his joints, 6 at his surgical site.  And even when all his local anesthetics and anesthesia wore off, it never got above an 8.  Initially this totally excited me because he hasn’t reported his pain level below a 10 for about a year now.  He says it’s a 10-, 10, or 10+ every day.  But then as this sank in, my husband and I realized that Parker is in pretty significant pain daily.  So, we are incredibly proud of his perseverance, resilience, enthusiasm, and persistence.

Parker had a good friend over last night.  They had such a good time.  They played video games and chatted and watched movies.  When he left though, Parker hit rock bottom.  He slept all afternoon.  Yet another reminder of the energy that is lacking, despite how hard he tries.

Thanks Mina for visiting Parker in the Infusion Room.
Parker had fun playing a joke on the doc and nurses.
He said he was tired of all the attempts to get his IVs started
(thus the headband with syringe), so he decided to get a port.

So, Friday was Parker’s infusion treatment and doc appointment.  We got news that his muscle enzymes have been off since his hospital stay in July.  We were asked how we felt about the treatment he has been on for 6 months now.  I feel like we have some big decisions to make again.  I am not ready to give up on Actemra yet, as it is the only thing that has even touched this horrible disease.  But as I was reminded about his pericardial effusion, elevated enzymes, pluersy, and now his stomach, I felt like someone was punching ME in the stomach.  This is all VERY REAL…and I keep trying to be optimistic and yet there seems to always be some new battle to buck up and fight.  Parker is now considering joint injections.  We will see…  Parker asked lots of questions this last visit and has been processing a lot this weekend.  We all have.

Beautiful tile mural on the 4th floor of Shands Hospital!

On the up-side, Parker has picked out really cool colors for his new light wheelchair that we hope gets approved.  We had a fabulous time at our Boggy Creek Family Weekend and Parker’s Pal came and visited him in the infusion room Friday.  Thank you so much Mina!  Logan is planning the most amazing Family Connect Day and we have so many fabulous speakers and volunteers and a wonderful venue.  And all our laundry is done!  Very therapeutic ;O) 

Logan and Parker had so much fun at Boggy Creek with
Mina (he lost a bet and had to wear a dress...it was Pirates and "Princess" weekend) and Jake!
Thanks guys, you were the best and we look forward to the day you are both Docs...Maybe Pediatric Rhuematologists? Hint, Hint.

"Thanks" is Definitely not Sufficient to Express Our Gratitude

Our family would like to share our letter of gratitude for all that Make-A-Wish did to grant Parker's wish to meet Ben Zobrist and the Tampa Bay Rays.

September 18, 2011

Dear Norma, all Make-A-Wish Staff (including Melissa, Eva, and Maria), and the Rays,

My family wants to thank each of you for all you did individually and together to grant Parker’s wish.  I am sure you constantly hear that “there are not enough words to express our gratitude”.   I am going to do my very best to express our heartfelt appreciation.

As you know, Parker’s sense of self drastically changed the day that he learned that he has systemic juvenile arthritis (a.k.a. still’s disease).  He went from being a child who was actively engaged in sports and very active movement, to clearly being a spectator; but he still has a great appreciation for sports.  He has also struggled with thoughts of the possibilities of this disease taking over, not only his joints and muscles, but his internal organs.  This realization would probably be too intense for most adults, and so we greatly admire our son for his bravery and perseverance. 

A parent’s job is to keep our children safe, teach good values and problem solving, and to bring happiness to their lives.  As hard as we have worked to keep him safe, this disease has invaded his physical body.  We are desperately trying to stop its progression and the costs have been great.  As with many life threatening diseases, when one is faced with this reality the world seems to stop.  And yet, as our world stopped, the world around us felt as if it was moving at fast pace.  Our family has dealt with making hard decisions, examining what is important, and realizing that our faith must propel us forward.

When it was first mentioned that our child would qualify for Make-A-Wish, there were very mixed emotions swarming inside of us.  One was, “oh no, there are other children who need this more than our child”.  Another was, “well he doesn’t have cancer, so I don’t think he should apply”.  A third was, “but he is going to get better so this should be reserved for kids who will not”.  Then finally, we faced the “truth”…there is no cure for our son’s JA; he is going to live with this the rest of his life; and he deserved to experience happiness and something to look forward to and celebrate.

Of course his wish every single day and with every single shooting star, fallen eye lash, dandelion, prayer, and birthday candle is for a cure…we wish that Make-A-Wish could grant the cure!  And although our wish for a cure has not come true yet, Make-A-Wish and Ben Zobrist has helped us with raising awareness that a cure is so desperately needed for systemic JA and all juvenile arthritis diseases.  This gift, to a parent, is priceless. 

Most importantly, Make-A-Wish and Ben Zobrist has brought profound happiness to our child.  Parker has long admired Ben Zobrist.  Parker feels that he is the most “loyal” fan of all time.  He began following Ben’s career very early on and what he loves most is the versatility that Zobrist has.  When he talks about him, there is pure excitement in his voice and amazement in his talents.  He admires that Zobrist takes on a challenge and that he stretches himself and his possibilities.  As parents, Michael and I both enjoy this excitement around the game of baseball but we have always felt that Ben Zobrist is a great role model for children as an athlete, father and through his faith.  As an educator, I am deeply touched that he thinks of our youth and does the “take Zobrist to school” program.  In talking with Ben Zobrist over lunch, my thoughts were confirmed; he is an exemplary role model for our children.  Parker “believes” that Zobrist can achieve his goals.  Interestingly, Parker is a lot like Ben Zobrist…Parker doesn’t give up, he stretches his abilities, and he has faith that one day there will be a cure and that his life has purpose.

As you know, this entire experience has been bitter sweet.  The same week that Parker was granted his wish, we were also dealing with my grandmother being released from the hospital with heart issue and then my grandfather being rushed to the hospital with hemorrhaging on his brain resulting in a stroke.  On our way to our Make-A-Wish, I went to the hospital to say good-bye to my sweet grandpa. 

As we switched gears, the four hours we spent with Ben Zobrist and the Rays were shear bliss.  It was as if we escaped reality.  We were greeted with love and excitement and the Rays took thoughtful care in including our older son, Logan, in the day of excitement.  We so appreciated that gesture. 

We pushed Parker in his wheelchair to the field and he go out of his chair to walk to home plate.  From that point forward the adrenalin he experienced gave him the strength to stay out of his chair the entire time with the Rays.  After standing on home plate and swinging the bat, Ben Zobrist entered the field.  Pure delight engulfed Parker’s face.  That moment seemed to take my breath away.  The joy was apparent, in his face, in his body, and I am sure it was filling up his soul.  This joy continued to grow as he interacted with Zobrist.  As exciting all the gifts of signed cards, bats, and jerseys were, the gift of time, love, and pure engagement with our son was the true gift.  Ben Zobrist brought our son’s joy back to him and us.  If I wasn’t there, in the moment, I would not have believed that Parker was throwing that baseball so accurately and forcefully to Ben.  It was as if he was “cured”…

I am sure Ben Zobrist has no idea that Parker had not had much strength or endurance for quite some time.  In fact, as soon as Ben walked away to prepare for the game, Parker sunk back into his wheelchair and admitted that he needed all his meds and that he had to leave to lay down.  Most days he feels terrible and deals with multiple medical appointments each week.  But the four hours with Ben Zobrist took all that away.  He was a kid again, filled with excitement and joy.  He had fun and felt “normal”.  We are so thankful that Ben Zobrist agreed to meet Parker and he spent so much time truly in the moment with him.  This gift was amazing and it keeps on giving every time he tells someone about his experience.  He lights up all over again, his voice has energy and so much excitement; it is hard to believe how very sick he is when he recalls his Make-A-Wish. 

Ben Zobrist’s and the Make-A-Wish Foundation’s gift has also spread to others.  Parker’s brother was intensely inspired by Ben’s kindness.  Both boys can see there is so much good in this world.  Parker has been recognized by others as “the child who had his wish granted and met Ben Zobrits”.  He received the most amazing letter of encouragement and admiration from a youth leader in the community.  And his story has touch people beyond our community.  A woman in NY sent him a Ben Zobrist bobble head from time when Zobrist was with the Tri-City Valley Cats.  So his Make-A-Wish is truly the gift that keeps on giving.

I have wanted to write this letter much sooner than now, but as you know, my grandfather passed away the evening of Parker’s Make-A-Wish.  So our family has been swelling with the entire spectrum of emotions.  But I must reflect for a moment on my grandfather.  He has taught us much in his beautiful life time.  He was a man of pure kindness.  None of us who knew him can ever think of a time when he was angry.  He always treated others with love and a helping hand.  He had a gift of granting children many beautifully contagious smiles.  He had a way of sharing his heart and bringing happiness to others.  I know he would have said that Parker’s Make-A-Wish was “ the most to say the least” and he would have thought that meeting Ben Zobrist would have been “top drawer” and would have reflected on the fact that all we need is a “smile and a few kind words”.  Thank you Make-A-Wish, the Rays, the Don Cesar, and most importantly Ben Zobrist your smiles and kindness and for granting Parker the gift of happiness. 

With much love,

Rochelle, Michael, Logan, and Parker Lentini

Make-A-Wish...A Picture is Worth A Thousand Words: By Parker

Limo arrives to drive us to meet Ben Zobrist



Stop at Subway to pick up food for our lunch with Zobrist





Dad and Mom in back of limo



Getting interviewed by the press





Giving Ben Zobrist some gifts for him and his kids



He thanks me for the gifts





Ben gave me some autographed baseball cards





Time to have some fun...Ben asked me to play catch



Ben and I playing catch





Ben and the family




As they stretched for the game they watched college football.




Longo autographes for us




Before game stretch




Time to answer some questions for the paper




Look at Zorilla on the wall




Answering some pre-game questions with Joe Madden




Dad and Kotchman




Logan and Upton




Upton and Zobrist laughing at our funny remarks




Johnny Damon signs my mini bat that Sadie gave me




Kotchman likes my number




John Jaso signs some stuff




Ben gave me his jersey and autographed it for me




Batting practice




Desmond Jennings didn't realize I had a lot for him to sign




Kelly Shoppach is very nice





Watching batting practice





Dad takes a picture of us and David Price





Mom poses for a picture with her new hat




Ben Zobrist hands




Ben Zorist signed my custom hat




Ben Zobrist feet



Don CeSar Sous Chef Jeremy Anderson




The pastry chef made me "the reveal desert"



We sat at the special table in the pastry kitchen





She made me an edible turtle, but I didn't eat it



The Don CeSar chefs gave me a shirt and cookbook



Thank you Make-A-Wish!!!!

  


Mom and Logan after Don CeSar tour