Systemic on-set juvenile arthritis is one mean vicious disease. Parker's joints (feet, ankles, wrists, hands, knees, shoulders, neck, ribs, hips) were sizzling hot yesterday and the vasculitis in his feet and ankles was pretty horrible. The pictures below don't capture the thickness of the vessel swelling with justice and the red and purple shades of his skin were pretty intense, but they will give you a bit of a sense of what this horrible disease "looks" like.
We are thankful for the friends and family who have checked in with us and who are thinking of our son and saying prayers. We have been taking it one day at a time. Tomorrow will be his third shot of rilonacept so we are hoping for a bit more progress with each new sunrise.