So as i went on to 5th grade i had to totally stop sports due to my arthritis and i still don't play them now. I mean every once in a while i ride my longboard and that’s the most exercise i ever get science my arthritis. So now i mainly watch baseball on TV with my dad or watch my brother Logan longboard.
Arthritis also affects my school life a lot. Mainly because I'm in a WHEELCHAIR school is
hard. Its not that kids make fun of me
(but some do) it’s that they think since I'm in a wheelchair i can’t walk. So when i do walk they act like it’s a
miracle. Then when i in it they all want
to push me like it’s the coolest thing in the world. The worst part is that everybody says I'm
lucky that i get pushed around in a wheelchair when there the lucky ones. First of all the wheelchair is the most uncomfortable
thing ever and you never get to control where you get to go because someone
else is controlling you. Then secondly
the price i pay to even be in the wheelchair in the first place is
horrible!! (Arthritis) Now that’s just
the wheelchair situation there’s lots more troubles with arthritis and
school. Like the work. Middle school is hard enough. Lucky for me i go to a gifted school with all
advanced classes. Then on top of that i
have the arthritis. Doing the work i can
do... turning it in on time not so much.
Then add in missing 173 days in the year you wonder if I'm cheating
while getting straight A's but then you realize there is nobody to cheat off if
you are not in school.
But we have found some solutions... like having an IEP. An
IEP is like an agreement with your school that lets me do things that other
kids don't get to do… Like turning work in late; going to the clinic to take a
nap; extended time on tests and quizzes; and even having someone come to the
house to tutor me. School has been very
hard and we don't know what this year holds. on all my meds i can get sick very
easily so i might have to wear a mask to school. So there’s another thing that arthritis does
to affect my life. Then you have the MILLIONS
of meds i have to take, some daily, some weekly and so on and so forth. I have so many meds that i have meds for my
meds and sometimes meds for those meds.
In the morning i take 7-8 pills 1 inhaler 2 nasal sprays and liquid. At night i take 6-7 pills i inhaler and 2
nasal sprays. Then every 3 days i get a
patch on my back changed. Every week i
get a methotrexate shot. Last but not
least i drive up to Gainesville to get a bi weekly infusion called actemera. It is a fairly new drug made for people with
systemic arthritis. Gosh I HATE meds!
No comments:
Post a Comment