So it is a very good thing that we have the blessing of a 3 month span because we have been very busy with both boys at various medical specialists and therapies. Sometimes I find it so very interesting how one thing gives, so that we can deal with something else.
Parker is now doing auqua therapy and biofeedback. We are happy with the progress thus far. Our main goal for him and for himself is to help him building his “coping skills” and also strength, since we know this disease is not going away. He is slowly gaining strength and using his chair less and less…but it seems to come at a cost and that truly is completely discouraging at times. But he knows that his choices have consequences and he is willing to endure in order to experience fun.
|Kids Get Arthritis Too|
|Parker, with his bi-pap machine on,|
woke long enough to put his
3 infusion needles into his belly
and start his infusion pump.