Parents, big brother (with enthesitis-related JA), and warrior sharing our perspectives of Juvenile Rheumatoid Arthritis, a painful autoimmune illness affecting joints & internal organs. JA affects 300,000 children in the US. Many also have other autoimmune illnesses. There are multiple forms of JA; some less severe than others. Parker has systemic onset JA with overlap syndrome, hypogammaglobulinemia, severe allergies and asthma. We proudly pound at JA together, HOPING for a cure!
Incredible Parker!!! What an inspiring attitude! We'd love for you to check out what our daughter is doing...she is a rare kid also. I have a feeling you'd like to be part of it. I will give you the link but also say if you are concerned about a malicious link...don't be...it's not. You can also just search on FB for it. www.facebook.com/fightinghardforallie
The quick story is...She is looking to start a non-profit for kids with Rare Diseases so she can create an online community so you guys can all interact...not entirely different than the camp you spend time at. It's called Fighting H.A.R.D. (Having A Rare Disease). We are just starting and working on all our plans. We'd be honored to see ya there. Keep Fighting H.A.R.D. Purple Playa...love that by the way lol
Incredible Parker!!! What an inspiring attitude! We'd love for you to check out what our daughter is doing...she is a rare kid also. I have a feeling you'd like to be part of it. I will give you the link but also say if you are concerned about a malicious link...don't be...it's not. You can also just search on FB for it. www.facebook.com/fightinghardforallie
ReplyDeleteThe quick story is...She is looking to start a non-profit for kids with Rare Diseases so she can create an online community so you guys can all interact...not entirely different than the camp you spend time at. It's called Fighting H.A.R.D. (Having A Rare Disease). We are just starting and working on all our plans. We'd be honored to see ya there. Keep Fighting H.A.R.D. Purple Playa...love that by the way lol
Proud to have Parker as one of my students at BDCHS. He is an AMAZING young man with a heart of gold!
ReplyDeleteParker makes us proud as a student, a volunteer who takes adversity and makes a difference in the lives of others, and as a special human being.
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