|Logan and Dad at Concert|
I care about all children, all families, people, my family, my children… Caring has made me who I am and who I will become. I am thankful that I care, but caring means we open ourselves up to multiple emotions and that can include not only joy and love, but also hurt and sadness.
Recently, I have been deeply hurt. I have learned that there are some, who we thought cared about our brave children, but have acted with cruelty. A small group has been bullying and making fun of parents and their children with JA. The sadder realization was to learn they too have children with JA. I have to admit, this really shocked me and it absolutely choked me up as I held back tears…tears for every family and for the poor mom who witnessed meanness against her own child. My instant reaction was to break away from all social media and groups and focus only on myself, my husband, and my children. For several weeks I couldn’t even post, blog, or communicate with others about this because I “care”…I have always cared what others think, feel.
I choose to be open to my emotions…feelings drive me forward and push me to be determined to overcome. The depth of my emotions continue to teach me many lessons: judgment is inevitable; challenges present themselves; and we will fall, but we can pick ourselves up. As I ponder these lessons and as our family faces our challenges, we allow ourselves to feel and then let go…moving through these emotions brings a sense of peace. Our peace fills us with strength and our love propels us forward. And as long as we act with love in our heart, it may leave us vulnerable, but at least we are being true.
Because our family cares so much, we are given the amazing and powerful gift of love. We love each other dearly, but this love also connects us to others. It is with others that we can battle this incredibly beastly disease and still enjoy life. We are so incredibly thankful to the many that have rallied around our family.
|Gaming with Troy during weekly infusioon|
I am happy to report that Parker’s labs are much better and overall his strength is getting better and pain is less many days. We are slowly decreasing some of his meds and increasing his activity level. We are still battling pulmonary issues and we do have a few set-backs from time-to-time but overall there is improvement and we will continue to support him as he takes baby steps forward so he can begin to run circles again. He has a goal to go back to school full time next year, as he enters the ninth grade.
|You are my master,|
I love you so!